Muscular Dystrophy (MD) is a group of genetic disorders characterized by progressive muscle degeneration and weakness. There are several types of muscular dystrophy, each with its own specific genetic mutation and clinical features. The most common and well-known form is Duchenne Muscular Dystrophy (DMD), which primarily affects boys and typically becomes evident in early childhood. Other forms include Becker Muscular Dystrophy (BMD), myotonic dystrophy, and facioscapulohumeral muscular dystrophy (FSHD), among others.
Muscular dystrophy is caused by mutations in the genes responsible for producing proteins that are essential for muscle function. These mutations lead to the gradual replacement of muscle tissue with fat and connective tissue, resulting in muscle weakness, loss of mobility, and functional impairment. The severity and progression of the disease vary depending on the specific type of muscular dystrophy.
Patients with muscular dystrophy often require comprehensive medical care and support to manage their condition, including physical therapy, assistive devices, and, in some cases, mobility aids like wheelchairs.
Centrobed’s Bed Functions for Patients with Muscular Dystrophy (MD):
Patients with muscular dystrophy have unique healthcare needs due to the progressive muscle weakness and physical limitations associated with the condition. The choice of bed functions for these patients should prioritize their comfort, safety, and support for managing symptoms related to mobility and muscle weakness. Here are some bed functions and considerations that may be beneficial for patients with muscular dystrophy:
- Adjustable Bed Height: An adjustable bed height allows patients to get in and out of bed more easily, making transfers and daily activities more manageable, especially as muscle weakness progresses. Here at Centrobed we know the importance of ease of transfer – beds with adjustable heights makes it a lot easier in shifting a patient from one area to another.
- Full Profiling Options: Full profiling capabilities, including adjustable head and foot sections, provide flexibility for patients with muscular dystrophy to find comfortable positions for resting, reading, or engaging in activities. This is a great addition to any bed, especially for someone with Muscular Dystrophy who might be spending long periods of time in the same bed/position with little to no adjustments.
- Tilt-in-Space Functionality: Tilt-in-space features allow the entire bed frame to tilt horizontally or vertically. This function can be beneficial for:
- Pressure Sore Prevention: Regularly changing the patient’s position can help prevent pressure sores, which may be a concern for individuals with limited mobility. Pressure sores can cause extreme discomfort especially among those who have little to no mobility. Using a bed which tilts both horizontally and vertically can massively assist in the reduction of such sores.
- Respiratory Support: Tilted positioning can assist with lung function and breathing for patients with muscular dystrophy who may experience respiratory challenges.
- Central Locking System: A central locking system for the bed’s wheels ensures stability during care activities and minimizes the risk of unintended bed movement, which can be disruptive and unsafe for patients with muscular dystrophy. The vast majority of our beds rest on 4-8 wheels, these wheels are lockable and have an extremely high weight tolerance.
- Pressure-Relief Mattress: A pressure-relief mattress helps distribute body weight evenly, reducing the risk of pressure sores, which can be a concern for individuals with limited mobility due to muscular dystrophy. Centrobed offers a variety of mattresses for a multitude of reasons and conditions, please get in touch for further information.
- Patient Positioning Aids: Built-in positioning aids, such as trapeze bars or handles, can assist patients with mobility and repositioning, promoting independence and comfort.
- Customisable Settings: Beds with customisable settings or memory presets make it easier for patients with muscular dystrophy to adjust the bed to their preferred positions for various activities. These pre-programmed features all come with our auto turning function box.
- Battery Backup: In case of power outages, battery backup ensures that essential bed functions remain operational, maintaining patient comfort and safety.
It’s essential to involve healthcare professionals, including neurologists, physical and occupational therapists, and caregivers, in assessing the patient’s specific needs and recommending the most suitable bed and equipment to enhance their comfort, safety, and quality of life, considering the individual variability of muscular dystrophy symptoms and progression. Please contact us for further information.